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Advance care plans (RESPECT)

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Advanced Care Plans or End of Life Plans are used for children and adults with life limiting conditions. They are a way for families to consider what they would like to happen to their children in the future especially when children are not able to express this themselves. Advance care plans are not legally binding but allow medical professionals to know what is important to you and your child in the event of them becoming unwell.


Respect is a nationally recognised advanced care plan. These documents should accompany your child or young person wherever they go.

Respect stands for:



Plan for


Care and



End of life Care Planning for Children – a Parent's Perspectives

Advanced care plan

Advanced care plans are best completed when your child is well. They can take time to complete. 

They allow you to support your child in the way you would wish, both medically and culturally. The plans will often prioritise comfort and symptom relief over life prolonging procedures where the outcome is likely to be poor. They give you an opportunity to ask important questions to the professionals already involved in your child’s care. You can ask information about:

    • the interventions available for your child in different situations
    • the success rate of these interventions
    • what is involved in interventions

Last reviewed: 12 November, 2023


Who can help

If you would like to change your child or young person's advanced care plan or if your child does not have an advanced care plan, but you would like to discuss one. 

You can call us on 0300 029 50 50 to start a conversation.

Open Monday to Friday 8:30am to 4:30pm (excluding bank holidays).

Have your say

Please tell us about your recent experience with any of our services by answering a few simple questions. We want to hear about what you felt went well and what you think we could do differently. 

Your voice makes a difference and helps us improve our services for you and other families.

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