Resources and local support

Explore different resources and local support

• ADHD

  • Read our information on ADHD.
  • Royal College of Psychiatry - Use the search bar to search 'ADHD for parents and carers.'
  • ADHD UK - A charity to help those with ADHD. 
  • The National Attention Deficit Disorder Information and Support Service - They provide information and resources about ADHD.
  • Challenging Behaviour Guide - The guide provides tips and strategies to help you and your family member during a period of new or increased challenging behaviour.

• Autism spectrum disorder

  • Read our information on autism after assessment.
  • Ambitious about Autism - A toolkit to help school children with autism understand and look after their own mental health and wellbeing.
  • Aspire - They deliver youth clubs and support, in and around Cambridge, for children and young people with autism.  
  • National Autistic Society - Offer advice and guidance on a wide range of information about autism. You can also read more about the National Autistic Society Cambridge branch.
  • Spectrum - They provide events, sessions, and support for families of children with Autism, additional needs, learning difficulties, and disabilities.
  • Challenging Behaviour Guide - The guide provides tips and strategies to help you and your family member during a period of new or increased challenging behaviour.

• Books and other online resources

  • He's not naughty: A children's guide to autism - Suitable for children aged 6+ to learn about autism.
  • Can I tell you about autism? - A guide for friends, families and professionals. Suitable for children aged 7+.
  • The ice-cream sundae guide to autism - An interactive child's book for understanding autism. Suitable for children aged 7+.
  • Telling your child about their diagnosis - A guide for parents and carers.
  • What is autism? - Find out more about autism by watching a film narrated by Alan Gardner, the Autistic Gardener.

• Communication tools

  • Communication Lily's Pain - Explore resources around communication challenges that can occur around a child with profound cognitive impairment who experience pain.
  • Picturepath - Helping people with additional needs to feel safer and more relaxed at home, school or in new environments.
  • Social stories - A tool that supports the safe and meaningful exchange of information between parents, professionals,and people with autism of all ages.

• Complex physical difficulties

  • Disability Living Allowance for children - Find out if your child is eligible for Disability Living Allowance.
  • 0 to 25 Disability Social Care - SEND Information Hub - Explore information, guidance and support to help your child or young person reach their potential.
  • Changing Places Toilets - Use the map to find a toilet.

• Epilepsy

  • Epilepsy Action - Discover information and advice about epilepsy.
  • Young Epilepsy - Explore information and support for those with epilepsy as well as parents and carers of children with epilepsy.

  ---

  Sending videos 

  If you are under the care of a specialist nurse, please email any videos of events to an email address below. Please mark your email for the attention of the paediatrician and include your child's details and date of birth.

  • If you are under the care of a specialist nurse within Cambridgeshire or Peterborough, please email any videos of events to add-tr.paediatricneurologypic@nhs.net. You can then email Janet Hill janet.hill25@nhs.net to say that the videos have been sent.
  • If you are under the care of a specialist nurse within King's Lynn, please email any videos of events to paediatric.sec@qehkl.nhs.uk

  ---

  Local epilepsy contacts (these are not an emergency service)

  Cambridge City, South and East

  Janet Hill: Paediatric Epilepsy Nurse Specialist 

  • Email janet.hill25@nhs.net
  • Call 01223 216805

  Hinchingbrooke

  Nicki Astle: Clinical Nurse Specialist 

  • Email nicki.astle@nhs.net
  • Call 01480 423153

  King's Lynn

  Paediatric Epilepsy Nurse Specialist

  • Email CENS@nchc.nhs.uk
  • Call 01553 668602 

• Learning disability

  • Read our information on development delay.
  • Learning Disability Matters - Designed for parents and carers of children & young people who have been identified as having a learning disability or have concerns that their child or young person might have a learning disability.
  • Early childhood resources for providers and caregivers - Find information that allows pediatric healthcare providers and families to bring the science of early childhood into their day to day.
  • Challenging Behaviour Guide - The guide provides tips and strategies to help you and your family member during a period of new or increased challenging behaviour.

• Local support organisations and services

  • Special Education Needs and Disability Information, Advice and Support Service (SENDIASS) - This is an independent part of the local authority which is there to support parents. This service can provide knowledge about the education processes during term-time. You can also watch a video about what SENDIASS is.
  • Pinpoint - Helping Cambridgeshire parents who have children with additional needs and disabilities. It is run for parents, by parents. You can also download the Pinpoint neurodiversity booklet.
  • Special Needs Community Information Point (SCIP) newsletter - To be added to the mailing list to receive a copy of this newsletter please contact Joan Adamson, SCIP Co-ordinator: joan.adamson@cambridgeshire.gov.uk
  • Disability Living Allowance - Your child may be eligible for disability living allowance. This is something you can look into to support the extra expenses with having a child with a developmental difference. 
  • Information about organisations which can support you to complete application forms. 
  • 0 to 25 Disability Social Care - The social care children's disabilities team provide support. You are able to make a referral yourself. 
  • Early Help Hub - Sometimes families need a bit of extra support. You might be worried about your child's behaviour or development. Or you and your family might experience some changes or difficulties that you can't manage by yourself. Whatever you are worried about, Early Help can support you and your family so that small problems do not become big problems.
  • Cambridgeshire SEND Ordinarily Available Provision Toolkit - Find information on cognition and learning, social emotional and mental health and lots more.
  • Challenging Behaviour Guide - The guide provides tips and strategies to help you and your family member during a period of new or increased challenging behaviour.
  • Occupational Therapy Advice Line - Available for children and families with a Cambridgeshire GP, not currently known to the occupational therapy service. It is available to discuss children aged 0 to 18 years (up to 19 years if in full time special school education).

• Mental health

  • Read our information on behaviour, emotions and mental health.
  • Keep Your Head - Brings together up to date information on mental health and well-being for children and young people, parents/carers and professionals.
  • YOUnited - Offers help to children and young people with their emotional wellbeing and mental health. Access local mental health services, information about referrals and links to crisis advice. 
  • Challenging Behaviour Guide - The guide provides tips and strategies to help you and your family member during a period of new or increased challenging behaviour.
  • Talk to your child's school about the support they offer. For example, school based counselling or play therapy. Schools can also access Mental Health Support Teams and the Emotional Health and Wellbeing Service. 

  • • Emotional Health and Wellbeing Service - Schools can access advice from the service on how to support a child's emotional needs at school. A professional may work with the child and can help communicate between the different agencies involved. This service requires a professional to refer. 

• Motor co-ordination

  • Watch a series of online learning sessions about co-ordination and motor skills.
  • Read more about the Occupational Therapy Service advice line.

• Oral Health

  • Read our information about dental health.

  Watch a video about looking after your child's teeth ages 0 to 3:

  ---

  ---

  Watch a video about looking after your child's teeth aged 3 to 6:

  ---

  Watch a video about looking after your child's teeth aged 7+:

• Sensory differences

  • Watch a series of online learning sessions about sensory differences.
  • Read more about the Occupational Therapy Service advice line.
  • Oral Care For All - Explore different products that may help with sensory differences.
  • Fledglings - Explore adaptive clothing including swimwear, shoes and bedding.

• Sleep

  • Read our information on sleep.
  • Cerebra - They offer a range of sleep services to help your child and everyone in your family to get a good night's sleep. 
  • The Sleep Charity - Offering lots of information on children's sleep problems, bedtime routines, bedroom environment and relaxation tips. 
  • Sleep programmes - Cambridgeshire County Council have specially trained sleep practitioners who can work with families to help overcome sleep issues. The sleep issues may include night waking, trouble settling to sleep, night-time routines and challenging behaviour at bedtime. The support offered will vary depending on individual needs. It may include workshops, signposting and guidance to other professionals, practical support or individual sleep programmes.
  • Sleep Action - A sleep charity providing sleep support, training and resources.

• Toileting

  • Read our information on toileting for additional needs.
  • Read our information about what your child's poo should look like.
  • Watch a series of online learning sessions that have been specifically created to support families and professionals learn about toileting for additional needs.
  • Eric - Learn about your child or young person's bowel and bladder problems.
  • How to use macrogol laxatives - Eric - Explore how to prepare and use macrogol laxatives.

• Weight monitoring and diet

  • Read our information on healthy eating.
  • Healthy You - A free service for Cambridgeshire and Peterborough residents who are looking to make changes to their lifestyle.
  • Healthy Schools - They help schools to build resilience among their children and young people to maximise their health and wellbeing so they can reach their full potential.
  • Online fitness activities - Explore activities for children and young people to help keep active.
  • The Eatwell Guides - Discover how much of what your child or young person eats overall should come from each food group to achieve a healthy, balanced diet.
  • Better Health - Healthier Families - Find information and advice on staying healthy including indoor activities and recipes.
  • Children's weight - NHS - Find information and advice about children's weight, including what you can do if your child is overweight or underweight.

  ---

  Sensory issues around eating

  • Watch this video about how to support your child on food and hygiene activities.
  • Food Refusal and Avoidant Eating in Children, including those with Autism Spectrum Conditions: A Practical Guide for Parents and Professionals - This is a book by Gillian Harris and Elizabeth Shea.
  • Watch the videos below to learn about fussy eating.